Tag Archives: DBS

Miracle

Some months ago, I wrote a piece about what I can do.  It was written from growing despair as I realized increasing limitations as a Parkinson’s patient…the incessant, inexorable downward spiral as this beast continues to drag me into its clutches.  By focusing on … Continue reading

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“Reverend”

It is a title we bestow on clergy, a form of address for those set apart as ministers or religious leaders, an identity for those who have found a servant towel with their names on it. And today, it is … Continue reading

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Parkinson’s Disease – Living with It. Moving on…

Friday was “Tweaking Day.” Eight weeks after optimization, I returned to my neurologist for evaluation and adjustments to this imbedded Boston-Scientific device. For the first time since this all begun, I had slept right through the night, off meds. I … Continue reading

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Parkinson’s Disease – Taming the Beast

I begin this entry with an ending:  If you ask me, “Would you go through all of this again?” I would now answer with a resounding “YES!” My sister was correct; the difficulties of the last five months are rapidly … Continue reading

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Parkinson’s Disease – The Waiting Game

Five months ago, I slammed into the Wall of Reality. The way back to myself has been difficult at times, sometimes intriguing, and occasionally funny. I had a second surgery, 3 weeks after the first, to implant a computer module in … Continue reading

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Parkinson’s Disease – THE WALL

I’m not really a risk-taker. I’m a dreamer. When I was a child, my Mom always said, “Kay, you have eyes bigger than your stomach!” That was her description of my propensity for taking more food than I could possibly … Continue reading

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Parkinson’s Disease – The Descent

At the end of the 2013 – 2014 school year, my eleventh as an elementary school music teacher, I was more exhausted than normal for that time of year.  I was too tired to even be excited about a new clinical … Continue reading

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Parkinson’s Disease – the Invasion

I’ve been running, and/or hiding ever since August of 2008, when I first heard the words, “I’m about 99 % certain you have Parkinson’s Disease,” aimed in my direction. There was an hour of panic, sitting in the car in … Continue reading

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